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By physician referral or invitation only

Lynch Syndrome Educational Workbook

We have created a workbook about Lynch Syndrome, a genetic condition that means an individual is at high risk of developing certain cancers, and family testing. It is important that patients with Lynch Syndrome tell their family members about their condition so their family members understand their risks and can be tested for Lynch Syndrome too. We are testing our workbook with a small group of patients with Lynch Syndrome to understand if the workbook is helpful in managing their condition and talking to family members.

Age & Gender

  • 18 years ~ 99 years
  • Male, Female, Gender Inclusive

Contact the Team

Location

Thank you for your interest, but this study is recruiting by invitation only.

United States (Nationwide)

Additional Study Information

Principal Investigator

Megan Roberts
UNC Eshelman School of Pharmacy-Division of Pharmaceutical Outcomes and Policy

Study Type

Behavioral or Social
Interventional

Study Topics

Behavior
Cancer (Colorectal, Uterine (endometrial))
Genetics and Genetic Disorders

IRB Number

20-3115

ClinicalTrials.gov

NCT04978350

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