Not currently enrolling

Multicenter study to learn more about brain avms and bleeding in people with Hereditary Hemorrhagic Telangiectasia (HHT)

The purpose of this study is to learn more about brain AVMs (BAVMs) and bleeding in HHT. We plan to study risk factors for rupture of BAVMs and also for other bleeding and features of HHT disease, including primarily genetics and imaging characteristics of the BAVMs. We hope that knowledge about risk factors will help improve the care and management of HHT patients.

Age & Gender

0 years ~ 99 years
Male, Female, Gender Inclusive

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Location

Thank you for your interest, but this study is not currently enrolling.

United States (Nationwide)

Additional Study Information

Principal Investigator

Raj Kasthuri
Medicine-Hematology

Study Type

Clinical or Medical
Observational

Study Topics

Brain, Head, Nervous System
Rare Diseases

IRB Number

20-0653

ClinicalTrials.gov

NCT01158807

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