The purpose for this research study is to learn more about PCD through the creation of a secure electronic clinical registry. Through this registry, researchers will be able to follow people living with PCD over time to learn more about how PCD affects people's health and the treatment people take.
Thank you for your interest, but this study is recruiting by invitation only.
North Carolina (Statewide)
Thomas Ferkol
Pediatrics - Pulmonology
Clinical or Medical
Registry
Ear, Nose, and Throat
Lungs and Breathing
Rare Diseases
19-1264
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