Unmet Needs: Equity in Prenatal Diagnosis

We are conducting a study to understand how diverse pregnant people make decisions about prenatal diagnosis when fetal anomalies are present. We will be conducting semi-structured interviews of individuals that have been in the above clinical situation to better understand how personal, community, and systems-level factors impact their decision making. We will also be studying the longitudinal impact of receiving genetic information during pregnancy, particularly among those that have undergone exome or genome sequencing for prenatal diagnosis.