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By physician referral or invitation only

Olfactory function in primary ciliary dyskinesia

Primary ciliary dyskinesia (PCD) is characterized by bronchiectasis, organ laterality, and sinusitis.[1] Chronic rhinosinusitis (CRS) is observed in the majority of patients with PCD.[2-6] We know that olfactory dysfunction is a common complaint among the general population with CRS,[7] however, there is little knowledge about olfaction dysfunction in PCD patients. This is an important PCD symptom to distinguish because prior research has shown a decrease in quality and increase in safety concerns in individuals who suffer from olfactory dysfunction.[8] The aim of this study is to address this gap in the literature by characterizing olfactory dysfunction in PCD patients. In doing so, we hope to evaluate the severity of olfactory dysfunction and the quality of life of this patient population. Study findings will further our understanding of the prevalence and severity of olfactory dysfunction in these patients.

Age & Gender

  • 5 years ~ 99 years
  • Male, Female, Gender Inclusive

Contact the Team

Location

Thank you for your interest, but this study is recruiting by invitation only.

United States (Nationwide)

Additional Study Information

Principal Investigator

Adam Kimple
Otolaryngology (ENT) - Sinus

Study Type

Clinical or Medical
Observational

Study Topics

Ear, Nose, and Throat
Lungs and Breathing

IRB Number

22-2104

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