he purpose of Parents and Infants Inter(X)action Intervention (PIXI) is to study ways of supporting the early development of infants diagnosed with rare neurogenetic disorders in their first year of life. PIXI is funded by the John Merck Fund and is led by RTI International (RTI) in collaboration with researchers at the University of North Carolina Chapel Hill. The team includes neurodevelopmental psychologists, early interventionists, and experts in neurogenetic conditions (e.g., fragile X syndrome, Angelman syndrome), autism spectrum disorder, and early childhood development. The goal of PIXI is to provide developmental and behavioral support for infants with rare neurogenetic disorders through a two-phase targeted parent-mediated intervention program.
Thank you for your interest, but this study is recruiting by invitation only.
United States (Nationwide)
Heather Hazlett
Psychiatry - Carolina Institute for Developmental Disabilities
Behavioral or Social
Interventional
Parents of Children
Rare Diseases
18-2079