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IBIS Down Syndrome Imaging Study

This study is taking place to create MRI-based biomarkers as future targets for specific therapies in Down Syndrome. Subjects will travel to UNC to be assessed using MRI as well as behavioral assessments and observations at 6, 12 and 24 months of age. We will also collect information about the subject's family to gather data on their environment.

Age & Gender

  • 0 years ~ 2 years
  • Male, Female, Gender Inclusive

Visit Availability

  • Extended hours (M-F, early morning or evening)

Location

Alabama, District of Columbia (Washington DC), Georgia, Mississippi, North Carolina (Statewide), South Carolina, Tennessee, Virginia

What will be asked of you

At each visit, you will meet with a member of the study team and fill out questionnaires, complete behavioral assessments and complete an MRI. Some questionnaires and interviews can also be done online and on the phone.

Incentives

Up to $300 per visit., Clinical assessment results and a picture of your brain from the MRI scan.

In-person visits:
3
Phone or online visits:
3
Total length of participation:
2 years

Looking for Specific Volunteers

Able to participate:

  • You have an infant with a diagnosis of Down Syndrome
  • You have an infant with no known diagnoses.

Not eligible if:

  • none

Contact the Team

Visit Location

Contact & Visit Location

Primary Contact

Visit Study Website

Primary Visit Location

Carolina Institute for Developmental Disabilities
101 Renee Lynne Ct, Carrboro, NC 27510, USA

Additional Study Information

Principal Investigator

Joseph Piven
Psychiatry - General

Study Type

Clinical or Medical
Observational

Study Topics

Developmental
Genetics and Genetic Disorders
Healthy Volunteer or General Population
Parents of Children

IRB Number

19-0662

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