The purpose of this study is to validate a new voice-enabled tablet to ensure it is an accurate and acceptable way to administer PROs questionnaires in Malawi. This voice-enabled tablet was developed specifically for patient populations who are unable to comfortably read and write, so that they can have equal access to participating in direct self-reporting their own PROs Questionaries without needing and interviewer to assist them. Once validated in the first 50 participants, then we will continue to enroll 500 participants who will take the PROMIS-25 and/or PRO-CTCAE Questionnaires at various time points throughout their treatment. This will allow you to directly self-complete the PRO surveys and give you a voice so that your struggles, quality of life, and symptoms can be more accurately and comprehensively communicated to the medical care team. We hope that through administering these PROs questionnaires, it will also improve the overall care, management of
Thank you for your interest, but this study is recruiting by invitation only.
International (Malawi)
Kate Westmoreland
Pediatrics - Hematology/Oncology
Behavioral or Social
Interventional
Blood Conditions
Cancer (Pediatric Cancers)
21-3325