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UNC Stroke Research Registry

The purpose of this registry is to connect stroke survivors interested in participating in research studies with researchers studying stroke recovery. Interested participants will share their contact information and limited information about their stroke. This information will be maintained in a secure database. Stroke survivors on the registry may be contacted by researchers to find out if they want to participate in one or more studies. Potential participants can choose whether to be in a given study if and when contacted. People who have not had strokes but are interested in participant in stroke-related research may also join the registry.

Age & Gender

  • 18 years ~ 99 years
  • Male, Female, Gender Inclusive

Visit Availability

  • Study is 100% remote - no in-person visits

Location

North Carolina (Statewide)

What will be asked of you

You will fill out a brief form with contact information and brief information about how a stroke has impacted communication, cognition, and mobility. Once you have joined the registry, you may be called about specific studies to see if you are interested in participating.

Total length of participation:
5 minutes

Looking for Specific Volunteers

Able to participate:

  • you experienced a stroke (cerebrovascular accident, embolism, brain hemorrhage)

Not eligible if:

  • you have a condition that primarily affects your memory or cognition

Looking for Healthy Volunteers

Requirements for healthy volunteers are different than for those with a specific condition. If you are interested in becoming a healthy volunteer for this study, use the below categories to determine if you are able to participate.

Able to participate:

  • a family member or friend had a stroke
  • you are interested in contributing to stroke research

Not eligible if:

  • you have a condition that primarily affects your memory or cognition
  • you have a neurological disease other than stroke that affects your communication, cognition, or movement

Contact the Team

Visit Location

  •  Adam Jacks

100% Remote (online, phone, text)

Additional Study Information

Principal Investigator

Adam Jacks
Allied Health Sciences

Study Type

Clinical or Medical
Registry

Study Topics

Brain, Head, Nervous System
Healthy Volunteer or General Population
Physical Disability
Language and Speech
Movement

IRB Number

07-0742

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Copyright © 2013-2022 The NC TraCS Institute, the integrated home of the NIH Clinical and Translational Science Awards (CTSA) Program at UNC-CH.  This website is made possible by CTSA Grant UL1TR002489 and the National Center for Advancing Translational Sciences.

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