Open

Registry of kidney patients with monoclonal gammopathies

"Monoclonal gammopathy" is a general term grouping a number of diseases that have in common the excessive production of certain immunoglobulin proteins. The purpose of this registry is to learn about the effects, complications, and therapies associated with monoclonal gammopathies and amyloidosis.

Age & Gender

18 years ~ 99 years
Male, Female, Gender Inclusive

Location

North Carolina (Statewide)

What will be asked of you

We will collect data from your medical records. We might ask you to fill a quality of life questionnaire (every 6 months or less).

Total length of participation:
many years- we don't have a stop date.

Looking for Specific Volunteers

Able to participate:

you have a monoclonal gammopathy or amyloidosis
The disease is affecting your kidney function

Not eligible if:

you don't want researchers to access your medical records.
you do not speak English (we only have study documents in English)

Contact the Team

Visit Location

Anne Froment

100% Remote (online, phone, text)

Additional Study Information

Principal Investigator

Gerald Hladik
Medicine-Nephrology

Study Type

Clinical or Medical
Registry

Study Topics

Rare Diseases

IRB Number

17-0040

Copyright © 2013-2022 The NC TraCS Institute, the integrated home of the NIH Clinical and Translational Science Awards (CTSA) Program at UNC-CH. This website is made possible by CTSA Grant UL1TR002489 and the National Center for Advancing Translational Sciences.

Helpful Links

Questions?

This email address is being protected from spambots. You need JavaScript enabled to view it.