This purpose of this study is to learn the best way to build advocacy skills for parents/caregivers of transition age youth with IDD. The goal is to improve parent and youth health and emotional well-being. Parents will attend a group with other parents; the groups will meet 4 times, once a week for 1 hour. The research team will collect 4 surveys from parents, 4 brief surveys from youth if the parent feels they are able to provide information, 4 audio-recordings of parent-provider conversations, and video-recordings of group sessions. Parents and youth will be compensated for their time.
Parents will attend a group with other parents; the groups will meet 4 times, once a week for 1 hour. The research team will collect 4 surveys from parents, 4 brief surveys from youth if the parent feels they are able to provide information, 4 audio-recordings of parent-provider conversations, and audio-recordings of group sessions.
learn about new services and strategies to get them
Kathleen Thomas
UNC Eshelman School of Pharmacy-Division of Pharmaceutical Outcomes and Policy
Behavioral or Social
Interventional
Behavior
Child and Teen Health
Developmental
Mental and Emotional Health
Parents of Children
23-0739