Are you a patient or survivor of a pediatric or young adult cancer? You may be able to take part in this registry to help us learn about long-term and treatment-related adverse outcomes.
The purpose of this research study is to better understand, from the perspective of Black patients, whether telemedicine visits make prostate cancer decision making easier or harder. The COVID-19 pandemic made it more difficult for patients to see their doctors, but care could continue by having appointments via a computer or phone, which many prostate cancer doctors used. Whether in person or remote, successfully choosing a treatment for prostate cancer often uses shared decision making (SDM), the process where doctors and patients work together to make decisions that match what matters to patients, but it is unknown whether virtual appointments make discussions better or worse. Other studies have shown that Black patients may be less satisfied with their treatment choices than non-Black patients. Therefore, it is important that we understand how to improve the same quality of care for Black patients.
We want to learn about the best ways to present information about COVID-19 treatment. We are doing interviews and focus groups with communities of color to find out what messaging would be useful and acceptable to their communities.
Are you a parent or guardian of an infant with Angelman Syndrome or Fragile X Syndrome? If so, please consider joining our non-invasive brain imaging study, which will help to advance our understanding of the earliest brain and behavior signs of these conditions. A copy of the MRI scan and a summary of behavioral assessments will be shared with the family. Compensation for participation will be provided, and all travel expenses will be covered.
In this study, we want to develop a website that will host a telenovela dramatized story called Infección de Amor. This site will help us to do a website usability test with 10 Latinas.
Para nuestro proyecto, estamos estudiando una evaluación del desarrollo infantil que pueda hacerse a distancia desde la casa de la familia. Esta se llama "Evaluación del neurodesarrollo con ayuda de los padres" o "PANDABox", según su acrónimo. PANDABox se ha usado con familias que hablan inglés, pero no se había traducido al español hasta ahora. De modo que hay dos razones por las que estamos haciendo nuestro estudio: primero, traducir la evaluación al español; y segundo, probar la evaluación con familias latinas con bebés que podrían beneficiarse de una evaluación del desarrollo. Después de probar la evaluación, les preguntaremos a las familias cómo fueron sus experiencias y si tienen alguna sugerencia para mejorarla. En general, esperamos mejorar la evaluación PANDABox en cuanto al idioma y la cultura de las familias que hablan español.
The purpose of this study is to show that engaging in deliberate practice via immediate video-based assessment will lead residents to acquire surgical skills faster and improve their intraoperative performance.
The purpose of this study is to understand experiences providing testimony to the Mother and Baby Homes Commission of Investigation's Confidential Committee.
The purpose of this research study is to investigate how difficulty swinging your leg or pushing off the ground plays influences shuffling during walking for individuals with Parkinson's Disease (PD). We are also looking at the effects of different treatment strategies for shuffling gait including resistance at the waist and ankles.
Are you interested in advancing treatments in Parkinson's disease? Did you know that the non-motor symptoms of Parkinson's disease are often very disabling and can lead to poor outcomes with the disease? If you have Parkinson's disease, you may be eligible to take part in a research study to learn if we can use non-invasive brain stimulation to treat these symptoms in Parkinson's disease