Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Engagement in the ENDIA study Bill and Kelly

Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...

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Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

ENDIA study interview with Bill and Kelly

A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study.  The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...

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Research Case Study: Partnering with Health Consumers In Analysis of Research To Improve Hospital Test Result Management – Part 1: A Researcher’s Perspective

Sharing stories is so important for developing greater community and researcher awareness and capacity for working together. So when we heard about a workshop involving health consumers in the analysis of research results a couple of months ago, we asked if the researcher and health consumers involved would be...

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