Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Engagement in the ENDIA study Bill and Kelly

Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...

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Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

ENDIA study interview with Bill and Kelly

A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study.  The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...

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Last chance for a free registration to ACTA2018 29-30Nov18 in Sydney.

ACTA Summit 2018 Free ticket

In case you missed our social media anouncements, we’ve been promoting the opportunity for a health consumer to get a free registration to come along to the ACTA clinical trials summit 29-30Nov18 in Sydney next week. Our Events and Current Opportunities pages can tell you more about the conference,...

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Research Case Study: Partnering with Health Consumers In Analysis of Research To Improve Hospital Test Result Management – Part 1: A Researcher’s Perspective

Sharing stories is so important for developing greater community and researcher awareness and capacity for working together. So when we heard about a workshop involving health consumers in the analysis of research results a couple of months ago, we asked if the researcher and health consumers involved would be...

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An experiment to teach young children about clinical trials & what it I learnt doing it

Teaching Children About CTs

Each August, Science Week runs across Australia. It is an opportunity to raise the profile of and engage people in science and research, from small grass roots events to large scale citizen science projects. This includes teaching children, who will be our next generation of STEM leaders. As a...

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PExS2018 Part 3(Final): Getting Patients & Researchers Working Together

Working Together

In the 3rd and final wrap of the workshop we held at the NSW Patient Experience Symposium (#PExS2018), we cover what Anthony Brown, Executive Director of Health Consumers NSW (HCNSW) shared in his overview of HCNSW, their interest in research, and getting researchers and patients working together, based on the...

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Our learnings from the SLHD Patient & Family Symposium

SLHD Patient and Family Symposium

Sydney Local Health District (SLHD) are in the midst of their Innovation Week 2018. They chose to kick off the week with a Patient and Family Symposium, highlighting the importance of keeping patients and their families as the focus for their activities. Given our interest in patient engagement, we...

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Perspectives on consumers in research – #TrialsTues

Health Voices - Consumers in research

We are very passionate about the possibilities for health consumers in research, as well as their carers. It was for this very reason that Research4Me was launched – to make it easier for health consumers and their families/carers to connect with research. , . For example, 80% of clinical trials...

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Launching #TrialsTues – Regularly Demystifying Clinical Trials

#TrialsTuesday

Today we are launching #TrialsTues to shine a spotlight on and encourage involvement in clinical trials on an ongoing basis. In 2005, ECRIN launched International Clinical Trials Day (ICTD), 20th May, to commemorate the day when James Lind started his famous clinical trial on scurvy in 1747, May 20th, and...

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#MedTech2017 Panel Recap: Patient Engagement in Clinical Trials

#MedTech2017 Panel Recap: Patient Engagement in Clinical Trials

Wednesday, 1 November, we had the privilege to be invited to be a panellist on a discussion about patient engagement in clinical trials at the Medical Technology Association of Australia’s (MTAA) annual medtech industry conference – MedTech 2017. The discussion was chaired by Melanie Gentgall, CEO of Praxis Australia, a non-profit...

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