2019 Patient Experience Symposium (PExS2019)

CommunityAdmin, 29 April 2019, Australia, consumers in research, health consumers, Medical Research, patient engagement, patient involvement, Patient Voice, PExS2019, PPI, public involvement, Sydney, 0

We are pleased to announce we will be exhibiting at the 2019 Patient Experience Symposium (PExS2019) at the Sydney International Convention Centre on Monday 29 – Tuesday 30 April 2019. We look forward to the opportunity to meet health consumers and health system professionals, learn from their stories and...

Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

CommunityAdmin, 26 November 2018, #PtExp, Case Study, Patient Engagement, Public Perceptions, Australia, clinical research, consumers in research, Medical Research, participant experiences, patient engagement, patient involvement, patients included, 0

Engagement in the ENDIA study Bill and Kelly

Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...

Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

CommunityAdmin, 25 November 2018, #PtExp, Case Study, Patient Engagement, Public Perceptions, Australia, clinical research, consumer representative, consumers in research, health consumers, Medical Research, patient engagement, patient involvement, Patient Voice, patients included, PPI, public perception, 0

ENDIA study interview with Bill and Kelly

A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study. The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...

MRFF Priorities 2018-2020: Time to have your say

CommunityAdmin, 7 August 2018, Uncategorized, Australia, clinical research, consumer, Medical Research, medical research future fund, MRFF, patient engagement, Patient Voice, public perception, 0

For those that haven’t heard, the Australian government is building a $20billion Medical Research Future Fund (MRFF). Per the website, this additional investment in health and medical research outside of the funding given to the National Health and Medical Research Council is “about giving Australians in need hope —...

Perspectives on consumers in research – #TrialsTues

CommunityAdmin, 15 May 2018, #PtExp, #TrialsTues, International Clinical Trials Day, Patient Engagement, Public Perceptions, #clinicaltrialsday, Australia, CHF, clinical research, Clinical Trials, consumers in research, health consumer, health research, Medical Research, patient engagement, Patient Experience, Research4Me, 0

We are very passionate about the possibilities for health consumers in research, as well as their carers. It was for this very reason that Research4Me was launched – to make it easier for health consumers and their families/carers to connect with research. , . For example, 80% of clinical trials...

MTAA MedTech2017 – Patient Engagement in Clinical Trials Panel Discussion

Website Administrator, 1 November 2017, Australia, Clinical Trials, MedTech, MedTech2017, MTAA, patient engagement, Patient Experience, Patient Voice, Sydney, 0

Research4Me’s founder, Dr Janelle Bowden, is delighted to be an invited speaker for a panel discussion about “Patient Engagement in Clinical Trials” on Wed 1 November, at the Medical Technology Association of Australia (MTAA) annual conference – MedTech2017. The session will be chaired by Melanie Gentgall, CEO of Praxis...

Training: Researchers and The Public Working Together for Better Clinical Trials

Website Administrator, 20 September 2017, #WhyClinicalTrialsMatter, Australia, Clinical Trials, health consumers, Medical Research, patient involvement, patients included, PPI, public involvement, research professionals, researchers, Sydney, Training, 0

This is an introductory workshop designed for clinical research professionals and members of the public interested in gaining the background and confidence to work together on clinical trials. The aim of the course will be to equip participants with: 1. a common understanding of research, clinical trials and the...

2019 Patient Experience Symposium (PExS2019)

Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

MRFF Priorities 2018-2020: Time to have your say

Perspectives on consumers in research – #TrialsTues

MTAA MedTech2017 – Patient Engagement in Clinical Trials Panel Discussion

Training: Researchers and The Public Working Together for Better Clinical Trials

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2019 Patient Experience Symposium (PExS2019)

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