Jackie Barreau: On The Value of Patient Involvement in Research

Jackie Barreau on patient involvement in medical research

Recently, we participated in a 4 week online course through Stanford Medicine X run by Dr Larry Chu and Dr Amy Price called “Partnering with the patients and the public in medical research” . It provided a nice introduction to topics like consumerism in healthcare, what can be gained...

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Research4Me welcomes ARCS commitment to patient engagement

ARCS

Research4Me and ARCS Australia have signed a Memorandum of Understanding, committing to taking action to increase the engagement and involvement of patients, caregivers and the public in health and medical research. The lived experience of patients and caregivers dealing with the health issues researchers are studying, as well as...

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Public Involvement in Health Service Research – International Symposium

Usyd 21 Feb 2019

On 21 Feb 2019, The University of Sydney, co funded by the University of Edinburgh, is holding an event. Knowledge from lived experience, ‘consumers’, ‘patients’ and ‘publics’ is becoming increasingly part of not just the results of research in health but of the creation and interpretation of health research....

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Our Founder Reflects on our 2018 Activities and What’s Next

2018 activities

It’s that time of year when we all start to reflect on our 2018 activities, and plan for the year ahead. Research4Me is no different. If I had to sum up 2018, its been another year of listening and learning from all corners of our community, from the patients,...

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ACTA Summit 2018

ACTA Summit

Research4Me is delighted to be participating in a panel discussion around consumer engagement in clinical trials, and exhibiting at the 2018 ACTA Summit. ACTA, the Australian Clinical Trials Alliance, is a national peak body supporting and representing the networks of clinician researchers that conduct investigator-initiated or “public-good” clinical trials within the Australian health system. The...

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Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Engagement in the ENDIA study Bill and Kelly

Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...

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Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

ENDIA study interview with Bill and Kelly

A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study.  The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...

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Training: Researchers and The Public Working Together for Better Clinical Trials

This is an introductory workshop designed for clinical research professionals and members of the public interested in gaining the background and confidence to work together on clinical trials. The aim of the course will be to equip participants with: 1. a common understanding of research, clinical trials and the...

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