We have study goals: (1) To conduct phone interviews to ask about symptoms and life impact from adult patients living with PSC; (2) To lead community advisory board discussions to decide on using existing symptom measures 'as is', modify existing measures or develop new measures to evaluate PSC symptoms; and (3) To conduct interviews with adult patients with PSC to assess their understanding and comprehension of selected symptom measures. We plan to consent and enroll up to 75 patients into a Screening database. From the database, we will select up to 24 patients to interview for Aim 1 and up to 16 patients to interview for Aim 3. Interviews will be conducted over the phone by staff at Duke University. At the end of the study, we will have 3 PSC symptom measures for use in future PSC studies.
Do you have chronic low back pain? Help us learn more about alternative and complementary treatment options for managing pain. We are doing a research study to determine if virtual mindfulness-based training can improve pain management. Compensation provided.
The purpose of this study is to find out how having inflammatory bowel disease (IBD) impacts the birth control concerns and preferences of young women with IBD.
We are looking to interview online freelancers Upwork to understand how freelancers handle the various opportunities and challenges that comes with online freelancing. Besides helping to build knowledge about digital work by sharing your experience, we hope that this interview may provide an opportunity for you to reflect on the work that you are currently doing and hope to do in the future.
In this study, we want to learn about lean use. Participation in this study involves a one-time, anonymous 20-minute survey.
Are you pregnant? Please take part in our study! You can help us learn more about how pregnancy hormones relate to mood and brain activity. Compensation provided.
Have you been diagnosed with Leukemia and are looking for another treatment option? In this study we are looking to see if the study drug DSP-5336 can help control Leukemia or achieve remission.
In this study, we want to learn about how a mother's experiences of social stress, such as discrimination, may affect the health of a mother and her young child. We also want to learn if the social support that mothers receive helps protect her children's immune and emotional health. Another question we are asking in this study is if there are some immune genes that turn on or off in young children. We want to learn what environmental influences may trigger these changes. We hope this information will give us more information about how to support the well-being of mothers and their young children.
This study is being done to answer the following question: What is the dose of durvalumab and olaparib in combination with radiation therapy that can be safely and tolerably taken by patients with pancreatic cancer? It is been done because we want to find out if this approach is better or worse than the usual approach for your pancreatic cancer. The usual approach is defined as care most people get for pancreatic cancer
Does your child have hearing loss in one ear, or single-sided deafness? If they are under the age of 3, they may be able to receive a cochlear implant as part of a research study to find out if early implantation helps children with single-sided deafness. If they are five, they may be able to help us study differences between children who receive a cochlear implant when they are little, children who do not receive a cochlear implant, and those with typical hearing.