Parents are stressed out finding and managing health and nonmedical services for their transition aged children with intellectual and developmental disabilities. Building advocacy skills through peer-to-peer learning provides inspiration and life-long tools to address new questions and needs as they arise. Parents of youth aged 11-27 with IDD are invited to participate in this study. Parents will attend a group with other parents; the groups will meet 4 times, once a week for 1 hour.
Have you or your child have been recently diagnosed with cancer? If so, you or your child may be able to take part in a research study looking at how muscle and physical function (strength, mobility, endurance) change in children and young adults undergoing cancer treatment.
Do you have asymptomatic multiple myeloma, also known as smoldering multiple myeloma? You may be able to take part in a research study to help us learn more about the effectiveness of a drug called daratumumab in combination with lenalidomide and steroids.
Do you have chronic lymphocytic leukemia and have not received a previous treatment for your cancer? You may be able to take part in a new research study comparing treatments for Chronic Lymphocytic Leukemia.
Have you been diagnosed with high-risk non-muscle invasive bladder cancer which has not responded to initial treatment with Bacillus Calmette-Guerin (BCG)? If so, you may be able to take part in a research study evaluating the safety of adding the study drug called pembrolizumab to an existing treatment option for bladder cancer patients.
Have you been diagnosed with bladder cancer? You may be able to take part in a research study looking at a combination of chemotherapy drugs given with immunotherapy for patients with muscle invasive bladder cancer.
Do you have Leukemia and recent test results show that the signs and symptoms of your cancer have returned? Are you looking for another treatment option? In this study, we want to see if a study medication can treat your cancer.
Are you experiencing symptoms of menopause? Have you noticed a change in your mood during your menopausal transition? If you have missed at least two periods, you may be able to take part in a research study. In this study, we want to learn how mood and stress may affect risk for heart disease in women during menopause.
If so, you may be able to take part in a research study that aims to identify non-invasive biomarkers for cervical cancer screening and monitoring following treatment of abnormal areas on the cervix caused by HPV.
Do you have relapsed or refractory multiple myeloma? Have you received at least one type of treatment? If so, you may be able to take part in a research study looking at the the safety of giving an investigational medication to patients with multiple myeloma.